Since our inception we have been focusing on reliable methods of delivering drugs and therapeutic devices through the blood brain barrier to where they will do most good. Together with our sister organisation, Wobbly Williams, we stage spectacular and very different events to raise the money required to advance the research that we believe will make the difference.
Bryn Williams set up Funding Neuro as the registered charity to which people can donate after he was diagnosed with Parkinson’s Disease aged 36. To read Bryn’s story and the history of the charity, which started with Wobbly Williams, please click here.
Funding Neuro is urgently raising the £900,000 required to accelerate drug development and advance the research that professionals strongly believe will make the difference.
Daisy Brooks, 6.
On 3rd May 2014 Daisy’s family were given the devastating news that she was suffering from a DIPG brain stem tumour and that she would quite soon begin to slip away.
We are now raising funds to support the experimental trial that Daisy was part of, and to advance the development of drugs that could cure this terrible condition, giving hope to children like Daisy.
Daisy was the first child to have the CED system implanted, with a port to allow repeated infusions of chemotherapy. She has played a huge part in the ongoing journey to find a cure, not only for DIPG but all types of brain tumours and neurological conditions. Following Daisy’s treatment the pioneering team from Bristol were then in a position to confidently deliver chemotherapy via the CED system to others, including Gughi.
Gughi is a gorgeous little 4 year old boy, who has traveled from Italy to receive Professor Gill’s experimental treatment for a DIPG. His desperate family have taken him to Paris and the USA seeking treatments, and eventually finding the only hope against this devastating condition:- Professor Gill and his team. Following three rounds of infusions of chemotherapy delivered by the CED system, Gughi’s tumour has reduced significantly.
When Gughi came to the Professor 3 months ago he was unable to walk unaided and he had double vision, he is now able to walk and his vision is returning to normal. Gughi is one of two children receiving this experimental treatment for DIPG, which follows Daisy Brooks, who was the first child to receive repeated infusions via CED.
We are urgently raising the £900,000 the professor needs for a clinical trial so that a further 18 children can be treated as soon as possible.
A brave young man James Willets is also receiving experimental treatment for a High Grade Glioblastoma.
James, was diagnosed with a Glioblastoma (a high grade brain tumour) in January 2014. Following this devastating news, at just 17 James had to undergo brain surgery to remove the tumour followed by oral chemotherapy, the standard NHS treatment. After looking at all possibilities James enrolled in a French trial, which was trialing a new drug, however, the tumour did not respond to treatment and began to regrow. There were 2 choices left for James, one, to do nothing or two to be a part of the revolutionary experimental treatment by Professor Gill and his team and receive chemotherapy via the Convection Enhanced Delivery system. James is currently doing well, with the support of his family and is receiving regular infusions at Bristol Children’s Hospital.
Throughout all of this James has remained positive and determined to work hard to fight this and to help others like him in the future.