Watch the Sky News coverage on our crowd funding appeal here
With the help of many people from all corners of the world we are due to run the first ever clinical trial using Professor Steven Gill’s Convection Enhanced Delivery system for children with DIPG.
In the meantime, children from a number of countries have been treated on compassionate grounds, with remarkable results. The compassionate treatment given to nine children has extended almost all of these children’s lives, with the hope of long term survival in the future.
Children with DIPG have on average only 9 months to live from diagnosis.
The delivery of chemotherapy via the CED system is the only treatment that is having an impact and offering hope to children and their families.
Meet some of the very brave children who have been diagnosed with DIPG.
Since our inception we have been focusing on reliable methods of delivering drugs and therapeutic devices through the blood brain barrier to where they will do most good. Together with our sister organisation, Wobbly Williams, we stage spectacular and very different events to raise the money required to advance the research that we believe will make the difference.
Bryn Williams set up Funding Neuro as the registered charity to which people can donate after he was diagnosed with Parkinson’s Disease aged 36.
To read Bryn’s story and the history of the charity, which started with Wobbly Williams, please click here.