Thank you to all of the kind and generous people who have donated so far towards the DIPG clinical trial. We are delighted to say that with additional fundraising, including by many families that have been devastated by DIPG, and offline donations we have reached over £300,000, THANK YOU!
We would like to say a huge thank you to the Kira Spedale Foundation (£7000) and the With Purpose charity (£5000) for their kind and generous donations towards the trial. You can find out more about these organisations, based in the USA, on their own websites, highlighted in pink. Read Kira Spedale’s story here
Since our inception we have been focusing on reliable methods of delivering drugs and therapeutic devices through the blood brain barrier to where they will do most good. Together with our sister organisation, Wobbly Williams, we stage spectacular and very different events to raise the money required to advance the research that we believe will make the difference.
Bryn Williams set up Funding Neuro as the registered charity to which people can donate after he was diagnosed with Parkinson’s Disease aged 36.
To read Bryn’s story and the history of the charity, which started with Wobbly Williams, please click here.
Watch the Sky News coverage on our crowd funding appeal here
These are the very brave children who have been treated by Professor Gill and his team.
Funding Neuro is urgently raising the £900,000 required to accelerate drug development and advance the research that professionals strongly believe will make the difference.
Kira, a brave little girl from Chicago, was one of the first children in the world to receive chemotherapy via Professor Gill’s Convection Enhanced Delivery system, for a DIPG brain tumour. The treatment gave Kira those extra precious months of health that enabled her to enjoy time with her family.
The average time for a child to survive a DIPG tumour from diagnosis is 9 months, Kira lived for 17 months.
On 3rd May 2014 Daisy’s family were given the devastating news that she was suffering from a DIPG brain stem tumour and that she would quite soon begin to slip away.
Gughi is only 5 and has traveled from Italy to receive Professor Gill’s experimental treatment for a DIPG.
Daisy was the first child to have the CED system implanted with a port to allow repeated infusions of chemotherapy. She, along with several other children, has played a huge part in the ongoing journey to find a cure – not only for DIPG but all types of brain tumours and neurological conditions.
Following these treatments the pioneering team from Bristol were then in a position to confidently deliver chemotherapy via the CED system to others.